Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Really. 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The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. Living a life we can be proud of is something we can control." - Claire Wineland. I had to be honest, she once explained. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She appeared in an episode of Red Band Society and in the documentary series My Last Days. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. She listened to the risks and the long list of side effects and emerged unfazed. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Read full obituary. I have my mother and Ellie is my sister. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Im grateful for the chance to keep being a person. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. I am also, like thousands of other people living on this planet, sick. The BBC is not responsible for the content of external sites. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. "If my biggest problem in life was to be healthy, I'd be incredibly bored. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. Im not an innocent and Im not a child. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. . Claire Wineland is shown on April 4, 2016 in Rancho Palos Verdes, California. She never emerged from her medically induced coma. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. But not long after the successful surgery, hope turned to fear. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. I'm willing to deal with anything.". Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. [3] She joined the Philips "Breathless Choir" as a soloist. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. Claires parents learned to trust their independent and strong-willed daughter. Search by Name. I would like to acknowledge Claire Wineland who passed away last night. pic.twitter.com/BsTEFmquR7. It's a reality of living with cystic fibrosis she's come to accept. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. She never emerged from her medically induced coma. Menu. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. At the time of birth, she had the life expectancy of only 5 years old. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. On Monday afternoon, her mother received word that Claire had already made a difference. Direct quote published by online women's magazine Glamour three days after her 2018 passing. Everything I'm proud of comes from some of the darkest things in my life. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc Jace Prescott Cause of Death, Date of Death, and More! Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! The BBC is not responsible for the content of external sites. Who was Ukrainian minister Denys Monastyrsky? She was 21. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. William Halford Cause of Death, Date of Death, and More! She was placed in a medically-induced coma, for 16 days. She revealed that The Clairity Project was not under her control. 2:33 PM EDT, Tue September 4, 2018. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. She was a wonderful person and the world . Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. Im grateful for all the people who donated to help me get through transplant. Submit an Obituary. Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. When she was unable to create videos due to declining health, the company cut her off. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. She passed away peacefully, with her parents by her side. Claire Wineland died at age 21, too young. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. pic.twitter.com/BsTEFmquR7. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! What happened in the Ukraine helicopter crash? She starred in the CW series My Last Days, which features real people with life-threatening illnesses. Claire Wineland was a person who did not like to be pitied. "Go enjoy your life. Since there was no formal contract in place, she did not have any legal option too. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. "Claire's gift is huge, I want your family to know that your daughter is a hero. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. It's not about how you feel second to second," she said. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. Menu. She had a popular YouTube channel, gave . Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. Get to know the real life super hero behind our bubbly Snap identity. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. Today, Claires Place Foundation continues to carry on Claires legacy. "The nine-hour surgery went well, and her mother reported that the lungs were working great. The Foundation has funded more than 26 families till now. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. To face each day, Claire Wineland undergoes hours of breathing treatments. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. I'm not an innocent and I'm not a child," she wrote in March. A quarter of Claires life was spent in the hospital. The cause of death was a massive stroke she suffered soon after the transplant surgery. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. She has gone on to become an advocate for others suffering from the disease she has had since birth. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Roy E Disney Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live -- and give -- more. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. She was also a speaker for the motivational TEDx Talks.. Why a terminally ill young woman has changed her mind about living. Im grateful for my own head and for all the weird things in it. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She once escaped from the hospital so she could attend a Bernie Sanders rally. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. "Life isn't just about being happy. Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. She needed financial help. real family is great. She has a younger sister named Ellie Wineland. . She did. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Then came the call that offered new life. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). Menu. She was 21. The Plain Dealer Homepage. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis.

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